Rare Revolution Magazine
The August 2022 edition of Rare Revolution Magazine featured Heather Smith and SCID Angels For Life. SCID Angels […]
Yearly Archives: 2022
Expectations and Experience: Parent and Patient Perspectives
Regarding Treatment for Severe ...
Published in August of 2021 in Volume 229 of Clinical Immunology, this article compiles the data regarding parent […]
Low T Cell Results
After receiving a positive newborn screening result you’ll want to understand what it means to have Low T […]
Prueba de detección de Inmunodeficiencia Combinada Severa (SCID) y afecciones ...
Our guide for parents following an abnormal SCID newborn screening is available in Spanish! Together with the Immune […]
SCID Types and Treatments
Have you learned that your baby has or may have SCID? Learn about the forms of SCID as […]
A Guide for Parents Following a Positive SCID Diagnosis
English version Click to Download our guide for parents following a confirmatory SCID diagnosis. Together with the Immune Deficiency […]
Guide to Hematopoietic Stem Cell Transplantation
Click to download the “Guide to Hematopoietic Stem Cell Transplantation” for SCID and other PIDD’s.
Toolkit for Parents
This is the Comprehensive Guide to a parent’s most commonly asked questions. Download and share this informational brochure […]