A new day has come!
When Jakob got diagnosed our hearts broke in so many pieces. We thought we would never recover when we learned we might lose him at age 2.
Monthly Archives: March 2024
Can you set the price on a child’s life?
When Seersha was born an investigational gene therapy, a one-time procedure that the researchers say may provide lifelong results was only available in the United States through a waitlist at The University of California Los Angeles (UCLA).
She’s just so joyful
This month we talked with Shayla, the mother of Seersha. Shayla and her family were forced to put their lives on hold as they waited