Newsletter Articles
I’m just glad they’re able to advance more treatment options ...
The SCID family showcased this month has 2 children diagnosed with Artemis SCID.
A new day has come!
When Jakob got diagnosed our hearts broke in so many pieces. We thought we would never recover when we learned we might lose him at age 2.
Can you set the price on a child’s life?
When Seersha was born an investigational gene therapy, a one-time procedure that the researchers say may provide lifelong results was only available in the United States through a waitlist at The University of California Los Angeles (UCLA).
She’s just so joyful
This month we talked with Shayla, the mother of Seersha. Shayla and her family were forced to put their lives on hold as they waited
Giving Tuesday and Year End Appeal
Our November 28th, Giving Tuesday campaign was a triple success thanks to all of our generous donors.
Be a Community Fundraiser
We are so grateful to all our community members who have shown their willingness to “Pay it Forward”.
I had prepared myself to accept that I probably wouldn’t ...
On my second date with my now husband, I probably told him “I’m not going to be able to have kids”