Publications

Immunoglobulin Product Booklet
Characteristics of immunoglobulin products used to treat primary immunodeficiencies (PI)

Rare Revolution Magazine
The August 2022 edition of Rare Revolution Magazine featured Heather Smith and SCID Angels For Life. SCID Angels […]

Expectations and Experience: Parent and Patient Perspectives
Regarding Treatment for Severe ...
Published in August of 2021 in Volume 229 of Clinical Immunology, this article compiles the data regarding parent […]

Low T Cell Results
After receiving a positive newborn screening result you’ll want to understand what it means to have Low T […]

Prueba de detección de Inmunodeficiencia Combinada Severa (SCID) y afecciones ...
Our guide for parents following an abnormal SCID newborn screening is available in Spanish! Together with the Immune […]

SCID Types and Treatments
Have you learned that your baby has or may have SCID? Learn about the forms of SCID as […]

A Guide for Parents Following a Positive SCID Diagnosis
English version Click to Download our guide for parents following a confirmatory SCID diagnosis. Together with the Immune Deficiency […]

Guide to Hematopoietic Stem Cell Transplantation
Click to download the “Guide to Hematopoietic Stem Cell Transplantation” for SCID and other PIDD’s.